Glaucoma UK is the operating name of the International Glaucoma Association (IGA). We are the only charity solely dedicated to supporting the 700,000+ people living with glaucoma in the UK. As a charity we rely on the kindness and generosity of our supporters and members, and we are committed to protecting and respecting your privacy.
This policy explains how and why we collect personal information about individuals and how we use that information. It explains the legal basis for this and the rights you have over the way your information is used.
For the purposes of the data protection legislation, including the General Data Protection Regulation (GDPR) and the Data Protection Act 2018, the Data Controller is Glaucoma UK. This means that we are responsible for deciding how we hold and use personal information about you.
Glaucoma UK is registered as a Data Controller in the name of the IGA: registration number Z7866865.
If you have any queries about this Policy or concerning your personal information please contact us by email at firstname.lastname@example.org by phone on 01233 64 81 71 or write to the Data Controller, Glaucoma UK, Woodcote House, 15 Highpoint Business Village, Henwood, Ashford, Kent TN24 8DH.
The type and amount of personal data we collect depends on why you are providing it.
If you are requesting information or materials, or to participate in our events, we will collect your name, address and/or email address and telephone number. We may also collect details of your profession and your workplace.
If you are applying for a research grant, a volunteer role or a paid job with us, the information you provide in your application and interview, and any references we take up, are necessary for the purposes of our considering the application.
If you are a supporter, member, donor or a customer purchasing goods, we will ask for your name, address and/or email address, telephone number, credit or debit card details, and whether or not you are a taxpayer (in order to claim Gift Aid).
If you are using our telephone helpline or requesting patient advice or materials relevant to your specific condition, we may also ask for details of your glaucoma, your medical treatment, medication, family glaucoma history, and other relevant health conditions. Certain types of personal data, including information about a person’s health, is given a higher level of protection under data protection legislation.
We may collect information from you whenever you have any involvement with us, for example when you:
We collect information:
We may use the information provided by you in a number of ways which reflect the legal basis applying to processing your data. These include:
The use of your information for the purposes set out above is lawful because one or more of the following applies:
We understand the importance of security of your personal information and take appropriate steps to safeguard it.
All telephone recordings are securely held in an encrypted format.
Credit/debit card payments are processed by third-party PCI-compliant payment gateways through secure servers, and card details are securely destroyed immediately after processing.
However, no data transmission over the internet can be guaranteed to be 100% secure. So while we strive to safeguard your information, we cannot guarantee the security of any information you provide online and you do this at your own risk.
We always ensure only authorised persons have access to your information, including our staff, volunteers and contractors who have a need to know, and that everyone who has access is appropriately trained to manage your information. Others who may have access to your information include:
Owing to matters such as financial or technical considerations the information you provide to us may be transferred to countries outside the European Economic Area (EEA), which are not subject to the same data protection regulations as apply in the UK. We meet our obligations under GDPR by ensuring that the information has equivalent protection as if it were being held within the EEA. We do this by ensuring that any third party processing your data outside the EEA either benefits from an adequacy determination for GDPR purposes and/or, where appropriate, we have entered into a Data Processing Agreement which contains model EU clauses.
We may also disclose your personal information if we are required to do so under any legal obligation and may use external data for the purposes of fraud prevention and credit risk reduction, or where doing so would not infringe your rights, but is necessary and in the public interest.
Other than this, we will not share your information with other organisations without your consent.
We would really appreciate it if you let us know if your contact details change. You can do so by contacting us at email@example.com or by calling us on 01233 64 81 71.
Cookies are small text files stored on your computer by the websites you visit.
They track your interactions with a website to make it work more efficiently for future sessions.
Cookies have many different uses. For example, they can store information to help you enter a site without having to log in. They can also help a website remember your preferred settings so it reloads them on your next visit. Cookies do not normally store personal information.
We do not knowingly solicit or process personal information from anyone aged 18 or under without parental or guardian’s consent.
Anyone aged under 18 who contacts Glaucoma UK should have the consent of a parent or guardian before supplying any personal information. If our staff consider that someone contacting us or requesting our services is under 18 they will ask for details of age before proceeding.
As glaucoma is a lifelong condition, we know that your need for support and your relationship with us will change over time, and we will only retain your personal data for as long as is necessary for a particular activity.
If you are a Glaucoma UK supporter, we will keep your details and may process your data while we have an ongoing relationship with you. If we haven’t heard from you for seven years, we will archive your data, which means we won’t use it any more unless you decide to restart your relationship with us.
If you’ve told us that you’ve left us a gift in your will or have expressed an interest in do so, we will keep data about you and your relationship with us until six years after your estate is wound up. This information will be used to make sure we receive any gift you may make.
We keep recordings of calls to our helplines and complaints for ten years, except where we need to keep the data as a record of your consent to be contacted by us, in which case we keep it for as long as we need it for compliance purposes.
We keep financial records, Gift Aid records and details of any contracts we enter into with you for seven years after the relevant transaction, which is required by law. We do not keep your credit card details in accordance with payment industry standards.
If you ask us to stop contacting you with marketing or fundraising materials, we will keep a record of your contact details and limited information needed to ensure that we comply with your request.
You have the right to:
Some of these rights only apply in certain circumstances and certain safeguards and limits or exemptions may apply in specific cases. We will let you know if we are unable to respond to your request to exercise your data protection rights.
You will not usually have to pay a fee to exercise these rights, but we may charge a reasonable fee if your request is unfounded or excessive. Alternatively, we may refuse to comply with the request in such circumstances.
We may need to request information from you to help us confirm your identity and ensure your right to exercise these rights. This is to ensure that personal information is not disclosed to any person who has no right to receive it.
If you are not happy with the way we have processed or dealt with your information, you can complain to the Information Commissioners Office. Further details can be found here https://ico.org.uk/concerns/
We review this policy regularly. Do please check this policy each time you consider giving your personal information to us.