Louise’s story

As someone living with the condition, if I could raise awareness, I’d encourage everyone to have regular eye tests at least every two years. And if you’ve recently been diagnosed, try not to worry too much because it might be manageable with medication.

A family history of glaucoma meant red flags were always raised before my diagnosis in 2010, especially since my eye pressure was consistently high at every routine eye test. Both my parents and an uncle had glaucoma, though my parents passed away before it caused any ill effects for them. I’ve worn glasses since I was three, and while my vision hadn’t changed, something never felt quite right at the back of my eyes – usually in the evenings. 

I was 48 when I was diagnosed, and it felt young to be hearing that news. I worried that such an early diagnosis might eventually lead to blindness. The specialist nurse provided information, but I had to undergo immediate laser treatment there and then. This was frightening because I’d only expected a routine appointment. Before seeing my specialist, I knew eye drops were commonly used to treat glaucoma, but I also understood there was no actual cure. 

Fortunately, glaucoma hasn’t had a major impact on my daily life. I use three types of eye drops each day and have had laser surgery twice in both eyes, along with early cataract surgery in one eye. Managing the condition hasn’t been too difficult for me; I simply have to keep track of my medications and make sure I reorder them on time. The drops have caused some redness around my eyes, but I usually cover it with makeup. I feel lucky that, despite our family history, my own children haven’t been affected. My two daughters, now in their 30s, attend regular eye tests and both have excellent eyesight. Luckily, they seem to have inherited their father’s vision, not mine. 

I first found Glaucoma UK on Facebook. While I haven’t needed direct support, it’s reassuring to know it’s available. As someone living with the condition, if I could raise awareness, I’d encourage everyone to have regular eye tests at least every two years. And if you’ve recently been diagnosed, try not to worry too much because it might be manageable with medication.

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